Tuesday, March 31, 2009
Some facts on FAS.......
"We believe FASD is a national health crisis. Over 125,000 newborns every year are exposed to heavy or binge drinking—the highest risk for FASD. Alcohol and pregnancy education must be elevated to a higher public health priority, and medical and mental health care systems must better serve all families in need. (the CDC states that 40,000 (1:100) children will be born this year with life long alcohol effects of some sort.)
We believe that to open the minds of those who can make a difference, we must remove the addiction and maternal stigma. Alcohol dependence is a chronic, progressive disease that can be treated. Treatment works, saves money and prevents future FASD births. Shaming and punishing birth mothers perpetuates the crisis and misunderstanding of the issue. (FASD can not be reversed. The damage is done at birth, but other children can be saved.)
We believe that …
FASD are the leading known preventable cause of mental retardation and birth defects, and a leading known cause of learning disabilities.
FASD annual births are higher than autism, and downs syndrome, cerebral palsy, cystic fibrosis, spina bifida and sudden infant death syndrome - COMBINED. "
Did you read that last one? FASD annual births are higher than autism/sd/cp/cf/sb/sids combined! And as a culture we are not talking about or taking it very seriously. Why not? What is it that makes it for the most part an invisible issue?
I have to wonder if it rests on the fact that we can't wrestle through calling unnecessary permanent brain damage of an unborn child wrong while still agreeing that abortion (killing the same child) is permissible.
I am against abortion. But I can see a world where abortion exists and we still speak out and work together to stop the prenatal abuse of the 40,000 children who will be born this year with permanent brain or physical damage simply because their mothers have the 'right' to do it.
I don't care about the politics on this. I care about the children who's lives are being ruined every day - before they take their first breath. I wish the word had been spread better before my own children's lives had been so tragically affected, I wish ......a different reality on these kids.
Science Fair Outcome......
Done. This is the mommy blog so I can say that I am so glad that 7th graders are not eligible for the International Science Fair. We have invested a lot of energy and family focus on this event and it's been great, but I am personally ready to shift back into a normal pattern of life for a while. And there are the other 9 kids needs to think about....... :) This first photo is one happy boy on Monday night. He received a 'bronze' medal with the other competitors who received scores in the 70-85% range. This was an excellent recognition for his first project and he was thrilled. The box he is holding is an external hard drive that was donated by Sea Gate and was the very last prize drawing of the night. Nothing like a cool electronic device to make him dance home.
Chuck M. is John's friend and mentor. He and his wife Linda were at the hospital within hours of his scrawny 5lb appearance into our family and have walked this parenting journey with us ever since. Chuck made a special trip to the Fair to support John emotionally and walk through the exhibits with him. What a perfect example of the mentor/mentee relationship in action.
The next big (and unexpected by this mommy) thrill was that John was chosen to receive a special award by IFT (International Food Technologies) for his Jr High project. It involves a invitation to their dinner meeting in April and a $250 cash prize. That's huge to a kid with a $10/month allowance and not a lot of special things that are just his - one reality of having a large family. And he will be able to start connecting with people in the Food Technologies industry perhaps on his way to a career.
Monday, March 30, 2009
Update from the Science Fair......
Yesterday he set up his project and had his first tagged violation. Displaying name brand labels on his project board - easily fixed with a Sharpie - but a good reminder of how intricate the International guidelines really are and how easy it would be to miss something. At the opening session last night I was affirmed that Science and Math are the most basic blocks to our children's education and unfortunately in MN 75% of the high school Seniors who take the ACT (it's voluntary here so these are the college-bound kids) are NOT ready for college level math or science classes. Scary numbers that will help keep my heart focused on finding the best ways to teach these intensive subjects to each of our kids. (Here he is last night - boards up and starting to get a little nervous...)
It was a special treat to spend last night at the Science Museum with a group of kids and mentors who were there because they love science. 3M had sponsored the evening and as it was after hours, we had the whole place to ourselves. Going through the exhibits with kids who were reading and discussing what was there while still enjoying themselves was a special gift to me. There was no chaos, even when the lights went out for a few minutes and we found ourselves in utter darkness they were self contained and fun to be with.
So I wait, I wonder, and being who I am, I stir things up just a little. Of course I had to ask the Fair Director how we would begin addressing the question of kids with disabilities being allowed to have an aid with them in the judging for social/emotional support. It's against the rules today, but maybe by the time my kiddos with issues are ready to compete there will be a way that they can be included also.
Friday, March 27, 2009
Navigating deep waters....learning how to swim in the world of parenting kids with disabilities.
As the kids are getting older we are starting to get involved in new areas of the disability world. Even simple things like Soccer Camp, Transracial Adoption Support Groups, Diabetes Education and Sunday School can lead us into the uncharted waters of how to chose what activities our kids should be involved with and how to make it work. With each activity we have to decide who to talk with about our kids challenges and when, what words to use in explaining the situation and how to access if the fit is a good one for the child.
It's deep water. There are as many opinions on these issues as there are on the topic of how to think about and discuss race. Just like we have decided how our family is going to address the Black, African American, Original People's question, we are now figuring out how we are going to manage the 'disability' ones. It's hard not to be swayed by the loudest voice or the most critical one. The voice of guilt is in on the discussion as well as that of the professional world and that of history - within our home we are seeking to find the voice of the Father because that is the only one we can trust to keep our family where it needs to be.
Thursday, March 26, 2009
Relief - the second visit to the Fetal Exposure Clinic...
The outcome of today's meeting was an affirmation that both kids have brain damage from prenatal alcohol exposure. There is no gentle way to write that, and it is a fact that will not change. It's simply what happens when a pre-born baby is exposed to alcohol and drugs. It was a relief to hear that what I had been suspecting, self diagnosing and researching for years was truly where we were at. The exact diagnosis - FAS, FASD, PFAS etc is still being settled, but there is no question on the damage that has been done.
The best part of today's meeting was to see in the testing results that the things we have been doing in our homeschool and home are exactly what he recommended. Just seeing it on paper made my mommy heart so happy. We can do this - we can homeschool our FASD kids and meet their needs well. Particularly because we have the flexibility to change direction as needed and have no requirement over site hindering what we intuitively know they need. It was good to see the things I had discovered about them - strengths as well as weakness measured in some quantifiable way that 'proved' we were on track. It's the hard part of homeschooling - there just are not many checks and balances so you often wonder how you are doing. This meeting was a blessing to me and an encouragement to keep doing what we are doing - because it is working.
Wednesday, March 25, 2009
A day for updating ......The Special Family.
Surgery updates from Sarah in India.....
Monday, March 23, 2009
The last two posts have been removed......
Please forgive me if I have offended you.
In Christ -
Dorothy
Friday, March 20, 2009
The first day of Spring in MN...............
Jerry is celebrating Spring by investigating everything in the new bathroom.
We woke up to snow again this morning. It was 60+ on Monday, then 40 and this morning we were down around 20 degrees with a light dusting of snow. I know it will melt soon - all of the residual ice glaciers are gone but it was a tad depressing to see the ground white again.
A sure sign of Spring at our house is the annual 'sand and oil' routine for the table and counter. The counter is done but I need more sand paper and another bottle of oil before I get to the table - isn't that just the way of life? :)
Tuesday, March 17, 2009
Post Back-up in my brain....Meet Noah!
Meet Noah #1 - he is a 9 year old Hidden Treasure living half way around the world in India at Sarah's Covenant Homes and thriving under her loving care. We are excited to be a part of how God is straightening out parts of his CP affected body through surgery and therapy so that he can be more comfortable sitting and learning to stand safely. Noah can't join our family through adoption (and he is too big to fit into my suitcase) but you can read more about him here. Please pray for Noah - he just had his eye surgery and now is headed into a pretty painful hip one as our Spring progresses.
This weeks required reading for FASD.....
"The Broken Cord" by Michael Dorris is the book of the week on my bed side table. It's the story of one fathers travels through FASD/LD and all of the realities that they entail. It's a really good read, a page turner, and an eye opener. It's the perfect time for Robert and I to read it as we are passing some major milestones in our affected kids lives and they are not reaching them 'as expected.' I would also encourage anyone who loves my kids to read it - understanding what their lives (and ours) really look like will help keep us all on the same page as we move forward into their teen years. Thanks Carrie for ordering me my own copies - I can't wait to share them out!
Sunday, March 15, 2009
A little window shopping on the internet...
This is the type of shopping I can really get into on a Sunday night. Helping provide for the physical needs of kids who God has brought out of hopelessness and into a place where His name is honored. In the end we haven't been able to really decide what we should do, so we are going to email Sarah and ask her if there is a particular need that we can meet and leave the decision between her and the Lord.
Friday, March 13, 2009
Progress.....
Thursday, March 12, 2009
Email exerpt .....how we adults impact the next generation.
"Yesterday afternoon my Mom took our two kids with her for some Grandma and Grand kid time. They ended up going shopping for shoes. When visiting one of the stores my Mom stops and looks straight at my daughter and says, "You know T when you get two other kids I cannot take you out shopping like this anymore." My nine year old daughter quickly responds, "Well, Grandma shoes are not as important as children and anyway the reason we are adopting is because we are not here to have our . . . homogeneous, self-centered, two children, double-latte life!" (Sounds strangely familiar!) And that ended that conversation with a very stunned look from my Mom. "
The kids are watching us mommies. Every word we speak, or type or sing. Our kids and the ones around us are absorbing it for good or harm. Even when we write posts (this is the one of mine she was refering to :) for adults the children are here looking over our shoulders!
Poetry? I guss that is a tag I hadn't thought of....
Happy Birthday to the 'original' Josh!

Wednesday, March 11, 2009
Missing Tris.....one year since his journey took him home.
Three and a half years ago a very special little boy was born in Alabama. From the worlds view he had little to live for. He was ill and large portions of his brain were missing. But he was alive and God had a very special family chosen and being prepared to bring him home. The day his soon-to-be mom called me I was serving a meal to the family and she said something along the lines of "I'm so in trouble, there is this baby and I think I'm in love.' She had been looking at a website for some friends and 'chanced' upon his photo and story under their 'Special Children' pull down. A few short weeks later I was flying to Georgia to bring our Lily home and their family was headed to Alabama to receive the blessing of Tristan. That weekend both our families expanded by one.Tristan's life was brief. They knew that when they adopted him and it made every day more precious. God was gracious and gave them 6 months past the 2 years that man projected.
Tristan never stood on his own, he never saw a sunrise as he was blind, he never drank from a cup nor did a 1000 things that we assume are part of childhood. But he was passionately loved and no one in his close or expanded family would say it was a wasted life, or a waste of his families lives. I love Tristan and his family and Praise God that they were faithful when the opportunity came to do something radical with their lives. They choose to walk the path of suffering with him and have seen God's blessing unfold. It's been a year since their paths divided and he went home, an bitter sweet year for those who love him.
Happy Birthday Josh!
Eight years ago today we didn't know about a little guy named Josh. We knew that hearts were preparing to embrace another child and that our homestudy was almost done, but there was nothing solid to differentiate this day from any other. It wasn't until 6 weeks later that we received the call that a little guy in North Carolina seemed destined to join our family. From a square little baby who's foster mom prayed regularly that he would 'grow some legs' to this lanky 8 year old today, Josh has been an amazing blessing to our family. He is tender hearted, loves babies, fills our home with energy and helps me to stretch in my own understanding of what it means to succeed.
We love you Josh and pray that you will grow into in a man who loves the Lord and who never tires of doing good. Blessings on your birthday ~ Mom and Dad
Real life with the new bathroom....
This week I let the family into my new bathroom sanctuary. It only took a few minutes of arguing with myself to let go of the perfect, sparkly white, everything in it's place newness of it. (Erin warned me!) Within a few hours we had experienced the usual number of disasters (though not the overflowing toilet one - got to love that Toto!) The hand soap was poured out, the conditioner pumped out and someone peed on the floor. But it's been released and is in general use now. Today Leah supervised bathing the youngest 5 children. What a blessing a happy 11 year old girl is on a morning when mom had too many sleep disruptions.
Tuesday, March 10, 2009
What can I teach my kids about being Black?
What can I teach you about being Black?
Not much,
Because I'm not.
But a I can teach you about pain,
And how to forgive peoples foolish words.
I can show you how to endure suffering,
So that through it Truth will be proclaimed.
I can love you and cry with you,
I can be the she-bear when you are threatened.
We can live where there is a rainbow of people,
and we can learn to love them together.
We can seek out the truth of history,
And not be afraid of the ugliness.
I can open your heart and your eyes
To the painful reality that comes
clinging to the back of sin.
And in the end,
I can release you into your destiny,
And wait for you to come home,
With a fuller understanding of who you are
and what you are to be in your life.
Then I can listen as you teach me,
What it means to be Black.
(Note: I posted this 11/07 but most of you were not around back then to share it with. :)
Monday, March 9, 2009
We are a City on a Hill when we adopt transracially.....(reposted from 2007)
There is no way to hide our calling when we are out in public and the human truth is that there are days when I really embrace the message of Matthew 5:14-16 and others that I just want to skip those verses altogether and go back into my homogenous, self-centered, two children, double-latte life. But God says in His word - “You are the light of the world. A city set on a hill can not be hidden. Nor do people light a lamp and put it under a basket, but on a stand, and it gives light to the whole house. In the same way, let your light shine before others, so that they may see your good works and give glory to your Father who is in heaven.”
Every time we walk out our front doors people are watching. What does your life testimony say when you walk out? Is it pleasing to God? I hope so! I hope that you are reading this because you have felt the call on your life to accept the blessing of a child who God raises up from somewhere outside your womb. And if you are not called to adopt yourself, I urge you to support those who are.
I pray as I’m writing that your ears will hear the call of the Lord on your life and be deaf to the clanging cries of the world. Adoption is hard, and transracial adoption is always out on public display so it is always hard. But that’s not bad. When we walk to the park, or the zoo or the museum, it is almost guaranteed that God has a ‘divine appointment’ waiting for us there. It’s taken a long time for me to embrace the moments I have been given to let my light shine so that God might be glorified, but I am learning. It’s living out of the call from 1 Peter 3:15 “…to always be prepared to make a defense to anyone who asks you for a reason for the hope that is in you.” I admit I never thought about it before we adopted, but nine years and seven blessings later I have a solid trust in he who placed us on the hill.
When you adopt children who look like you there is a lot of attention for a brief time and then people sort of forget and strangers don’t have a clue, so the public part of adoption is pretty much done (excepting medical issues and genealogy projects in school). But when you adopt transracially that phase is never over – the fact that God built your family though adoption is always right out front, always an opportunity to give Glory to our Father in heaven. So get your testimony ready, soften your heart and receive the questions from strangers with joy because YOU get to tell them about the God who made your family beautiful.
A good man smiles when you approach him with 20lbs of stuffing and a plan.....
Yesterday God provided us with 20lbs of wild rice stuffing through Mikes Discount Foods. After the crew was in bed Robert and I had a 'hot' Sunday night date in the kitchen and made 8 pans of cubed turkey with stuffing and gravy for the freezer (4 dinners and 4 lunches worth.)
This is one aspect of the new bathroom I haven't shared. Probably all of my friends knew about these but somehow I missed it - a built in small ring for the potty-training or small bottomed crew. Excellent as I have two to toilet train between now and summer and then Jerry will be right behind them. i really like the fact that the kids ring snaps up into the lid with a strong magnet so it isn't likely to get in a larger persons way when it is not needed.
Saturday, March 7, 2009
Drum roll please... before and after photos.
The sink area. It's hard to explain, but the sink used to be wedged into that space beside the toilet. We moved it to the other wall and made more pipes disappear.
Grey walls to white, broken window to new frosted glass one. This still isn't a complete photo of the tub. I didn't realize I had missed photographing it complete until now.
Here is the view from the kitchen. Too bad the lights were on in the new bathroom - it really doesn't glare that much. But it does show the completed shower and tub. Amazing change isn't it?!
The view from the office entry into the bathroom. That photo on the wall is actually a second medicine cabinet and it holds photos, or pictures your children draw for you. Thanks Josh for this self portrait of you and your siblings.
The last big push of the bathroom remodel.....
And in the truth of my life....it always looks the worst when you are almost done. I have to make a huge mess to make any progress in my life and this is no exception. Here's my kitchen.... :)
We also had a touch of spring melt this week. At 40' we threw open the doors and let a bit of fresh air into the house. Joe kept running out into the snow but Jerry choose to watch from safety - smart boy.
Wednesday, March 4, 2009
Survival Tricks In My Home...or Managing a Large Family of Little people 101.
Some examples.....I used to do much of our car maintenance and repairs. I was happy to do the basics and ventured into some of the harder things like heater systems and water pumps. Now we have an extended warranty on the 15 passenger van and I am happy to pay the shop to keep the Neon running smoothly. Finding time to put gas in, schedule maintenance, update the tabs and get through the car-wash is enough details for my brain to manage on the topic of cars. I could do much of the work keeping them on the road, but who's going to do my job while I do it?
How about the dishwasher. It's still sort of new and fun for me - 5 years ago we updated that portion of the kitchen and added it in. Tonight I had 7 minutes to do 'something' in the kitchen. It was a mess but I was home alone with the little ones and I had given them a 10 minute bed warning....7 minutes to make a dent. It was 3/4 full of clean dishes, and I had another 1/4 of a load in the sink. Not time to unload and reload (I'm trying to be a woman of my word with the kids. 10 means 10.) So I added the dirty to the clean and ran them all again. Not the best use of resources, but an excellent use of mommy time and I will have a full clean load for the crew to put away in the morning.
Then there is the cooking. About a month ago I came to a strange realization that that had shifted also. We don't cook from recipes in the traditional sense -we do it the other way around. We look at what we have and then dream up what we can do with it. There are no quick trips to the store for single ingredients or special items. Actually it is a 'special' event worth noting when I get a wild hair (twice a year or so) and go out shopping with a special meal in mind. Instead we keep about 100 basic items in the spice drawer and cupboard and work from there. Usually we eat "As the Lord provides." Which means that we eat a lot of seasonal things (my kids wont see very many fresh apples again until next fall) , bulk breads (what ever whole grain loaves they have when we go to the outlet) and sale items. Not too many processed things, though that always shifts when we are in transition with construction or a new baby. Then it's bring on the snack crackers and string cheese! This mom needs a little mental margin. :)
Many household chores have shifted also. I don't fold any ones laundry but daddies. We have shelving with 12 laundry baskets in three rows and I can toss clean items into any ones bin without too much effort. I sort a large load in about 3 minutes and move on to the next thing. Of course that means we don't own anything that wrinkles or needs much special care but I don't miss them.
I could go on and bore you to death. But the gist of it is that we have recognized that margin and parental time in a large family is a valuable commodity. It is something that needs to be invested wisely in things that are eternal (people) and not wasted on things that are temporary and unimportant like folding sweat pants. :)
And it all breaks down......
One of the rubs with having 10 children in a 109 year old house is that everything is in some state of decay. The rest of the house (and the children who occupy it) don't take a break from 'breaking' just because I am focused on another area.
No in fact the damage escalates because I am not on the top of my parenting game so things slide that usually wouldn't. I have a few new things to add to my maintenance list this week - enough to make me sigh and call the bigger kids to my side as 'maintenance workers in training.' If I keep training them, I am sure that one day I will be able to point at the sink and say 'Oh, that faucet has an issue child, would you please figure out what is wrong and repair it?" For now, the job is mine and I have to decide where to start : plumbing, electrical, broken windows, plaster repair, lock adjusting, or replacing the window insulation boards that keep the bedrooms warm at night...good to have choices I suppose and I am sure to be employed tomorrow. :)
P.S. Decision was made easy when I went upstairs to tuck the girls in bed .....my 4 poster bed frame was about to come apart at the corners. Time for the rubber mallet and the wood glue! A broken bed beats a hole in the wall any day.
P.S.S. Of course as I stood up after gluing and pounding on the bed I caught my jeans on the crib in our room and tore a hole in them. One thing off the list....another thing onto it!
Tuesday, March 3, 2009
In out of the cold....the clawfoot strength test.
FASD - These are the easy years......
I admit it scares me as a mom. I've looked at the statistics for men in prison. There is a disproportionate number of people with 'suspected' FASD incarcerated - hugely so. Terrifyingly so. Living with kids who have this type of brain damage I can see how it happens..lack of impulse control leads to bad decision making followed by an inability to access the situation quickly once it starts to escalate. The simple fact that he is transfixed and paralyzed by dangerous and emotional situations may leave him where has no business being. Too close to a drug deal, a shooting, a fight...not a part of it - but sucked into the drama and not able to walk away. Guilty by association.
So I teach, and I train, and I pray and oh yes..I weep with all my heart. Over this child who is so vulnerable and who has such a hard road ahead. It's hard to say, but these are the 'easy' years. When his fights are with mom and brothers. When he is spanked for defiance and not fired. Where forgiveness and love are guaranteed and where he is protected from the hard reality of the world that will not understand his hidden disabilities.
These are the easy years, I don't want to lose them because I am fighting to make him something that he isn't. I don't want to waste this short time I have to help him build a firm foundation against the gathering storm.
Monday, March 2, 2009
Bathroom fun....Weldon is done with the tile!
Tonight Weldon finished grouting the wall and floor tiles for the bathroom. It looks amazing! I can get photos is I skip a few of the options on my camera so here are a few updates from today...
Weldon still had a smile after hours of grout work
And he is never lonely with Joe around to copy him and ask questions about the tools.
Jerry (see him in the bottom center?) snuck into the bathroom last night and stood mesmerized by the new light fixture. The electrician was over on Saturday and installed the new fixtures and switches. And here is an improvement that only Missy and Jeff could appreciate....he added in a second 17 slot electrical panel! Maybe no more overloaded circuit breakers?!
